Treatment for Progeria Syndrome
In reality , there is no definite treatment for progeria syndrome , constant observation of the sum and cardiovascular watercraft sometimes serve to manage the progeria syndrome of your tike .
Fortunately , there are some discourse that may help to ease the progeria syndrome or may detain the symptom or the sign of the shape . Some of the treatments to alleviate the symptoms of progeria syndrome are :
Investigational Treatment for Progeria Syndrome
The recent research for empathize the progeria syndrome is break on . At the same time , endeavour to find out new treatment is on the progression . Some of the enquiry areas for progeria syndrome are :
Lifestyle Changes for Progeria Syndrome
There are some dance step that can be easier for you to exercise at household for your shaver endure from progeria syndrome . These are :
Coping with Progeria Syndrome
Coping with progeria syndrome is not at all loose for both the parents and the small fry with progeria syndrome . It is emotionally upsetting when you will know that your child has been detect with progeria syndrome . Immediately you will know that the child is encountering multiple problem , many challenge , and emasculated - short living bridge . For all of you dealing with the problem will only intimate a great obligation to emotional , physical and economical crisis .
bear disorders like progeria syndrome , the financial support grouping , comprises of phratry , friends and other health pro , flirt a very worthful part . In support chemical group you will find people with progeria syndrome . Interact with them , it will assist you to maintain your sentiment regarding the emotion arising out of the condition of the child . If there is none in your group , then you may contact with the health professionals or clergymen . It will help a lot .
you’re able to wonder your doctor about the independent or ego - help group in the community . There are also other undecomposed sources of support groups in your area and you may consult with them . These are : public library , health department , telephony directory , and also internet forum . You will not be able to find progeria syndrome -specific group because the upset is very rare . But , it is possible to find out parent of tiddler suffering from any chronic disorder . fortuitously , the progeria syndrome research foundation may find for you some of the fellowship that are struggle with the job . you may meet with the foundation over the phone . telephone dial 978 - 535 - 2594 to reach the progeria syndrome foundation .
Helping Your Child to Cope with Progeria Syndrome
help a child to cope with progeria syndrome is very hard and painful . Your minor with progeria syndrome may be under the spell of grief and reverence because they lie with that their life will be reduce - short because of the progeria syndrome . Your fry , immediately need your support in create explanation of the notion of death involve help from faith and church property . You may need to gratify your kid by answering him/ her about the conditions of the family unit after expiry .
It is very of import that you should speak with your child frankly and truthfully . attempt to reassure within the limit of your belief system . You need to know the way of interaction to the child with progeria syndrome . The clergymen or the therapist may help you to prepare the conversation for the valuable guidance .
Your minor may directly babble out with the therapists for getting comfort and solacement for progeria syndrome .
Prognosis for Progeria Syndrome
As progeria syndrome is a fatal disorder , many children die of heart disease sooner or by and by . The sufferers are more inclined to heart ailments . The progeria syndrome child hold out till 13 years , though in some cause , they live on till their 20s .
The maximal number of progeria syndrome sufferer die because of the cardiovascular disorders . Though there are other cause . These are marasmus , shot , raptus , and accidental brain shock .
Also interpret :
